These are the faces of global brain damage.
A very rare genetic disorder in the family of #nkh
This metabolic disorder impacts their body's ability to produce energy.
This means they have global delays in all areas, are non-verbal (for now), and their lives will be cut short by a lot due to their condition.
NEVER EVER take a single day for granted. The harsh truth is that no one knows their last day or last breath.
If you know the story of Daniel, you'll understand me when I say that I believe that “even if” God doesn't heal them on this side of heaven, He is still good.
Is this hard? Yes.
Is this horrific? Yes.
Is God still good? Yes. 🙌
Sometimes horrible things happen, but I believe God uses them to mold us. The question is, will you let him mold you?