top of page
Julia Erman

The Diagnosis

NKH, nonketotic hyperglycemia, LIAS variant form.


6 kids in the world... Ours make 8.


The harsh truth, most of these kids die young, very young, like 10 days old.


Ours are still alive.


The oldest, was 16.


This is life with a rare genetic disorder that degenerates over time.


Curious what it's like, follow along or send me a message.


There are many things I don't know, but one thing I do know is this journey of ours is meant to be shared.

112 views2 comments

Recent Posts

See All

2 Comments


Kathy Hoffman
Kathy Hoffman
Jan 21, 2022

I love what you are doing on your journey with sharing your story! You live the life you have been given well. 🙏❤️

Like
Julia Erman
Jun 16, 2022
Replying to

Thank you

Like
bottom of page