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  • Julia Erman

The Diagnosis

NKH, nonketotic hyperglycemia, LIAS variant form.


6 kids in the world... Ours make 8.


The harsh truth, most of these kids die young, very young, like 10 days old.


Ours are still alive.


The oldest, was 16.


This is life with a rare genetic disorder that degenerates over time.


Curious what it's like, follow along or send me a message.


There are many things I don't know, but one thing I do know is this journey of ours is meant to be shared.

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